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Alcohol Recovery Startups Shared Patients' Private Data With Advertisers - Slash...

 2 years ago
source link: https://yro.slashdot.org/story/23/04/05/0432213/alcohol-recovery-startups-shared-patients-private-data-with-advertisers
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Alcohol Recovery Startups Shared Patients' Private Data With Advertisers

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An anonymous reader quotes a report from TechCrunch: For years, online alcohol recovery startups Monument and Tempest were sharing with advertisers the personal information and health data of their patients without their consent. Monument, which acquired Tempest in 2022, confirmed the extensive years-long leak of patients' information in a data breach notification filed with California's attorney general last week, blaming their use of third-party tracking systems developed by ad giants including Facebook, Google, Microsoft and Pinterest. When reached for comment, Monument CEO Mike Russell confirmed more than 100,000 patients are affected. In its disclosure, the companies confirmed their use of website trackers, which are small snippets of code that share with tech giants information about visitors to their websites, and often used for analytics and advertising. The data shared with advertisers includes patient names, dates of birth, email and postal addresses, phone numbers and membership numbers associated with the companies and patients' insurance provider. The data also included the person's photo, unique digital ID, which services or plan the patient is using, appointment information and assessment and survey responses submitted by the patient, which includes detailed responses about a person's alcohol consumption and used to determine their course of treatment. Monument's own website says these survey answers are "protected" and "used only" by its care team. Monument confirmed that it shared patients' sensitive data with advertisers since January 2020, and Tempest since November 2017. Both companies say they have removed the tracking code from their websites. But the tech giants are not obligated to delete the data that Monument and Tempest shared with them.

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This doing things without consent stuff.

Not a fan of it.

by DarkRookie2 ( 5551422 ) on Wednesday April 05, 2023 @09:18AM (#63427184)

No one will be punished. If they are, it will be a pittance. These companies will survive and continue on to screw up again.

by HBI ( 10338492 ) on Wednesday April 05, 2023 @09:26AM (#63427208)

Considering the repercussions of being identified as an addict on your job prospects, legal rights (addicts/alcoholics are often specially deprived of rights in law) and background investigations in general, which could impact insurability (auto, life) and such, this is pretty bad. Seems like a pretty nasty class action lawsuit is justified since it would be easy to prove there was some harm here.

The whole idea of commercialized addiction recovery is debatable anyway, but that's another conversation. Turns out the physical aspect of the addiction is just the tip of the iceberg. Most people are using the drugs/alcohol to self-medicate another issue, even if they don't realize it. Getting them off the alcohol or drugs doesn't do anything about that. In retrospect, the physical addiction is often the easy part.

I'm avoiding any program lingo but I know about that, and as you'd expect the view of this commercial recovery stuff is pretty dim. Whatever way you go, the numbers are not good on recovery, nowhere near what they claim. You still don't want anyone knowing unless they have to - or you make it impossible to avoid, such as by getting a DUI.

  • Re:

    Almost every life and auto application I have ever seen asks you to disclose medical conditions; which chemical dependency on drugs/alcohol certainly qualifies. Many of them directly ask if you or a parent are alcohol.

    This is necessary information for appropriate underwriting decisions. Your argument seems to be boohoo it makes it harder for these people to commit frauds of their own?

    insure-ability is a non-issue unless you want to argue for restricts on considering drug/alcohol addiction in underwriting (w

    • Re:

      You seem to be making a judgement. You might consider why you are making that one size fits all judgement. That is all.
    • by mobby_6kl ( 668092 ) on Wednesday April 05, 2023 @10:17AM (#63427344)

      Almost every life and auto application I have ever seen asks you to disclose medical conditions; which chemical dependency on drugs/alcohol certainly qualifies. Many of them directly ask if you or a parent are alcohol.

      This is necessary information for appropriate underwriting decisions. Your argument seems to be boohoo it makes it harder for these people to commit frauds of their own?

      It's your private medical data and not theirs to disclose, that's it.

  • Re:

    Worse is that inpatient addiction recovery in the US is priced at obscene levels. I believe more than an order of magnitude higher than anywhere else in the world. These companies are already making so much money for doing so little. I am not an addict (other than caffeine) so I don't want to speak for anybody else. But if I could take that much time off of work (and life) to recover and spend that much money, I think I'd rather book a stay (for the same price) at a luxury resort and hire a private nurs
    • The physical addiction part is the easy part. It's the psychological part that makes addiction a disease. That's why people relapse even decades after being sober. It's not as easy as just over coming withdrawl.
      • Re:

        Right which is why one is better saving the money on inpatient addiction facilities where you pay thousands of dollars a day for physical withdrawal and use that money for mental health counseling. In the sane part of the world, inpatient addiction treatment is priced non-astronomically.
    • Re:

      I agree in general, though one must keep in mind that 'relapse is part of recovery' and have a safety net for the inevitable relapse. One of my relatives that works with rehabs claims that the rough average is 7x through the rehab system before it sticks, and even then, relapse is still a reality.
      • Re:

        Which is a fancy way of saying that the rehab programs don't work. The success rate is less than 15%!
        • Re:

          One of the things i've learned in my own recovery (from codependency, being the partner of an addict) is that I try to not volunteer information that people can discover for themselves, or try to make judgement calls for others. That is otherwise known as 'control', which is a big problem for the codependents that try to 'save' addicts.

          I generally agree with you, but only after you come to your own conclusion.

          • Re:

            I've also known addicts. Feel free to judge me. But it's not an area in which I try to help because I have no skills or experience. And the success rate is quite low. I wish it were otherwise. I hope none of my posts are construed as specific advice to anybody rather than general statements. I would not offer any advice to somebody who actually asked me in terms of addiction since I don't know anything.
            • Re:

              I was talking myself rather than you, and was explaining why my comments fail to take logical leaps that I know are there, as you pointed out. You aren't saying anything wrong - you aren't a codependent perhaps. We say we are just like the alcoholics/addicts themselves except we don't use substances. Our drug is control, thinking we can tell people how to live their lives 'better' than they can. It might even be objectively true, that we do know better, but you can't control others. They ultimately are

  • You mean where you get a postcard that says "you may be entitled to compensation of 14 cents usd..." that you throw away?
    • Re:

      No, where the vendor gets torn to pieces for allowing this to happen and they pierce the corporate veil and get the officers personal assets.

      One can dream.

  • Re:

    I know people in the recovery scam. Outside of the volunteer non profits, the users are largely screwed. It is expensive and to make a profit every bit has to be monetized

    This meshes with the larger proliferation of pill mill apps. You go online. The doctor checks your credit report and presides you psychotropics. You are then put on a mailing list for other scams, including recovery.

    • Re:

      I don't disagree. I don't have a solution except to point people who want recovery to actual options that might work. Ironically they are mostly free, but you have to want it bad enough.

      One of the sayings is "Recovery isn't for those who need it, it is for those who want it".

      • Re:

        Which is what I said. Volunteer based non profits can work. Otherwise you are the product.

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